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During the 2018 NORD Rare Summit, over 800 leaders from FDA, NIH, industry, patient groups, payers and research institutions addressed the New Era of Patient-Focused Innovation. Together, NORD Rare Summit attendees explored the new and innovative ways in which patients and caregivers are helping drive progress for the rare disease community.
-Patient Advocate, Chris Anselmo
-Research Nurse III, Cincinatti Children’s Hospital Medical Center
-Director of Research, Hemophilia Federation of America
-Director of Support Groups, CSRF
-Senior Director , Medical Affairs, Cytokinetics, Inc.
-President & CEO, EDSers United
-A Twist of Fate