Sign up to receive updates about the 2019 event!
As technology in rare disease accelerates, and with topics like drug pricing being a top priority in government, we must act now to drive innovation and collaboration to develop stronger resources, better outcomes and find cures for the community. In 2019, we believe The Time is Now to prioritize action in making positive changes for the millions of Americans living with rare diseases.
Year after year, the NORD Rare Summit poster exhibit continues to grow. In 2018, close to 100 posters were presented to 800+ attendees. Now is your chance to be a part of the action in 2019! The lead authors of the top three posters selected by the review committee will be eligible to receive a complimentary registration to attend the Summit.
If you have conducted rare disease or orphan product research studies or public health projects, we invite you to submit a poster abstract by August 2. You will be notified by August 30 if your abstract is selected.
-Ohio State Ambassador for NORD's Rare Action Network , Charlene York
-Patient Advocate, Chris Anselmo
-Research Nurse III, Cincinatti Children’s Hospital Medical Center
-Director of Research, Hemophilia Federation of America
-Senior Director , Medical Affairs, Cytokinetics, Inc.
-President & CEO, EDSers United
-A Twist of Fate