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The NORD Rare Summit, which historically features more than 20 speakers from FDA and more than 80 thought leaders from the patient community and industry, provides a unique opportunity to hear from the experts and join the conversation on issues of unprecedented importance.
This event is your opportunity to:
-Research Nurse III, Cincinatti Children’s Hospital Medical Center
-ECD Global Alliance
-Director of Research, Hemophilia Federation of America
-Director of Support Groups, CSRF
-Senior Director , Medical Affairs, Cytokinetics, Inc.
-President & CEO, EDSers United
-A Twist of Fate