NORD’s Rare Diseases and Orphan Products Breakthrough Summit is the largest and most meaningful multi-stakeholder event of its kind – historically featuring over 20 speakers from the FDA, participation from over 80 patient organizations and the Pharma/Biotech industry’s foremost experts in orphan product innovation, investment and commercialization.
The 2016 Breakthrough Summit is your opportunity to collaborate with the top leaders from the FDA, NIH, industry, patient groups, payers and research institutions to address the progress and innovations in rare disease diagnosis, treatment, patient engagement and market access of orphan products.
The 2016 keynotes include FDA Commissioner, Dr. Robert Califf; parent advocate and co-founder of CureBatten.org, Kristen Gray; and senior policy analyst at Prevision Policy, Kate Rawson (read more).
NORD’s Conference networking app helps you and your colleagues see who’s attending and schedule one-on-one meetings in advance. Plus, roundtable discussions during Lunch & Learn sessions create opportunities for robust, intimate discussions.
Researchers, whether they be students or professionals, interested in presenting their rare disease research to a large and diverse audience are encouraged to submit poster abstracts for the NORD Summit. The theme for poster sessions at the summit will be “Life-Transforming Treatments” with four topic areas that researchers can focus on. More information and an application is available here.
-Research Nurse III, Cincinatti Children’s Hospital Medical Center
-ECD Global Alliance
-Director of Research, Hemophilia Federation of America
-Director of Support Groups, CSRF
-Senior Director , Medical Affairs, Cytokinetics, Inc.
-President & CEO, EDSers United
-A Twist of Fate
2016 General Inquiries
2016 Sponsorship Inquiries