Scroll
To Top
Download Agenda Registration
""Leaving this conference, I couldn’t help but feel that I had joined a rare disease family I never knew I had." "

-Patient Advocate, Chris Anselmo

"I want to thank you again for the opportunity to attend the NORD meeting this week! It was a fantastic event. The content was very informative and I made some great networking connections."

-Early Design Campaign Manager, Pulmonary Hypertension Association

"Well-chosen, expert speakers."

-Science Coordinator, A-T Children’s Project

"Fantastic meeting of all the relevant stakeholders to bringing treatments to patients."

-Senior Director, Medical Affairs, Cytokinetics, Inc.

"Great conference! I am excited to get back to my organization and work on some projects that are inspired by the information shared."

-President & CEO, EDSers United

"Excellent sessions [that] demonstrated the way in which various FDA departments impact rare disease drug development."

-Senior Director, Head Regulatory, Rare Diseases, GlaxoSmithKline

"Excellent networking opportunity… The number of patient advocates in attendance speaks volumes for your organization's commitment to meaningful patient engagement."

-Canadian Organization for Rare Disorders

"I made many new contacts in the rare disease patient advocacy, government and industry fields."

-President, XLH Network

"A fantastic event. The content was very informative and I made some great networking connections."

-Associate Director of Research Programs, Foundation for Prader-Willi Research

"This has been a successful meeting between my spiritual and emotional dedication to fellow RD patients and the scientific & regulatory experts with their valuable lot of tools to help us navigate the confusing aspects of being a good advocate."

-Director of Support Groups, CSRF