 Kristen Angell Associate Director of Advocacy NORD |  Hannah Armstead GFPD Diversity Committee Board Member, Sibling Caregiver and Advocate |  Christopher Austin , MD Director National Center for Advancing Translational Sciences National Institutes of Health |
 Nick Bath Director US Senate HELP Committee |  Jennifer Beck American Porphyria Foundation |  Susan Berry , MD Professor, Division of Genetics and Metabolism Departments of Pediatrics and Genetics, Cell Biology & Development University of Minnesota |
 Vishal Bhatnagar , MD Associate Director for Patient Outcomes Oncology Center of Excellence, FDA |  Fritz Bittenbender Senior Vice President, Access and External Affairs Genentech |  Vanessa Boulanger Director of Research Programs NORD |
 Danielle Boyce Associate Director of Research Programs NORD |  Julie Breneiser Executive Director Gorlin Syndrome Alliance |  Bert Bruce VIce President, Global Commercial Development, Rare Disease Pfizer Biopharmaceuticals Group |
 Melissa Bryce Gamble Co- Founder and Executive Director The Global Foundation for Peroxisomal Disorders |  Kirk Campbell , MD Associate Professor of Medicine, Vice Chair for Diversity and Inclusion Director, Nephrology Fellowship Program Icahn School of Medice at Mount Sinai |  Patrizia Cavazzoni , MD Deputy Director for Operations Center for Drug Evaluation and Research(CDER) , Food and Drug Administration |
 Dennis V. Chornenky , MBA, MPH, MS White House Presidential Innovation Fellow, Executive Office of the Presidents Office of Science and Technology Policy |  Debbie Drell Director of Membership NORD |  Eric Dube CEO Retrophin |
 Khair El Zarrad , PhD Deputy Director, Office of Medical Policy - Center for Drug Evaluation and Research Food & Drug Administration |  David Fajgenbaum , MD, MBA, MSc, FCPP Co-founder and Executive Director of the Castleman Disease Collaborative Network (CDCN), Assistant Professor of Medicine in Translational Medicine & Human Genetics at the University of Pennsylvania, and Associate Director, Patient Impact for the Penn Orphan Disease Center |  Pamela Gavin Chief Strategy Officer NORD |
 James Gellar , MD, FAAP Professor of Pediatirics Medical Director, Kidney & Liver Tumor Programs Director, Advanced Cancer Therapeutics Network Director, Pilot Translational and Clinical Studies Program, CCTST Cincinnati Children's Hospital Medical Center, Division of Oncology |  Adam Gluck Head, U.S. and Sanofi Genzyme Corporate Affairs Sanofi Genzyme |  Linda Gouler Blount President & Chief Executive Officer Black Women's Health Imperative |
 Jason Hafler Managing Director Sanofi Ventures |  Stephen M. Hahn , MD Commissioner US Food and Drug Administration |  Martin Ho , MD Associate Director, Quantitative Patient Inputs & RWE Food and Drug Administration |
 Kay Holcombe , MS Critical Path Institiute, NORD Board Member |  Charles Holmes , MD Director, Center for Innovation in Global Health, Professor of Medicine, Georgetown University School of Medicine, and Distinguished Scholar and Program Director, O'Neill Institute for National and Global Health Law Georgetown University |  John Hopper President Fibrolamellar Cancer Foundation |
 Alice Houk Senior Director of Health Professional Programs Aplastic Anemia & MDS International Foundation |  Julian Isla President & Founder Foundation 29 |  Hylton Joffe , MD Acting Director Office of Rare Diseases, Pediatrics, Urologic and Reproductive Medicine at FDA |
 Maha Katabi General Partner Sofinnova Investments |  David Keane Senior Genomic Consultant GeneDx |  Robin Kelley Representative D- IL 2nd Disctrict State of Illinois |
 Walter Koroshetz , MD, PhD Director National Institute of Neurological Disorders and Stroke |  Peter Langmuir , MD Group Vice President, Oncology Targeted Therapeutics Incyte |  Larissa Lapteva , MD Associate Director, DCEPT/OTAT Center for Biologics Evaluation and Research Food and Drug Administration |
 Jane Larkindale Executive Director Duchenne Regulatory Science Consortium, Rare Diseases Cures Accelerator- Data and Analytics Platform |  Camilla Lauritzen MSc, MCC, MMBA, Chief Patient Officer Leo Pharma |  Yann le Cam Chief Executive Officer EURORDIS |
 Ryan Long Deputy Staff Director House Committee on Energy & Commerce |  Martin Mackay , Pharma PhD Co-Founder Rallybio |  Kira Mann Chief Executive Officer Mito ACTION |
 Peter Marks , MD, PhD Director CBER FDA |  Willam Marsh , MD State Representative, NH |  Janet Maynard , MD, MHS Director, Office of Orphan Products Development Food and Drug Administration |
 Michelle McMurry- Heath , MD, PhD President and Chief Executive Officer Biotechnology Innovation Organization (BIO) |  Amy Medina Board of Directors CureSMA |  Randy Milby Founder, Chief Executive Officer Hillstream BioParma |
 Kristi Mitchell , MPH Practice Director, Center for Healthcare Transformation Avalere Health |  Kevin Mott Member, Board of Directors NephCure Kidney Institute |  Christine Munro Children's Hospital of Pittsburgh (CHOP) |
 Francois Nader , MD, MBA Chairman Acceleron |  Miriam O'Day President & CEO Alpha-1 Foundation |  Corrie Painter , PhD Associate Director of Operations and Scientific Outreach for the Broad Cancer Program, Associate Director of Count Me In Broad Institute |
 Jim Palma Executive Director TargetCancer Foundation |  Mike Porath Founder & CEO The Mighty |  Deanna Portero Management Analyst, Office of Rare Diseases Research (ORDR) National Center for Advancing Translational Sciences (NCATS) |
 Stuart Portman Health Policy Advisor US Senate Committee on Finance | Wendell Primus Senior Policy Advisor on Budget and Health to Congresswoman Nancy Pelosi (D-CA) |  Debra Regier Childrens National and the Rare Disease Institute |
 Karlyne Reilly , PhD Director Rate Tumor Initiative, CCR, NCI | Donna Roscoe , PhD Food & Drug Administration |  Heidi Ross Director Of Policy NORD |
 Peter Saltonstall President and CEO NORD |  Terence Sanger , MD, PhD, CHOC Vice President for Research and Chief Scientific Officer CHOC Children's Hospital of Orange County |  Lisa Sarfaty Director of Strategic Planning & Project Development NORD |
 David Scheer Scheer & Company Inc | Allison Seebald Senior Research Programs Manager NORD |  Sandra Sermone President/Executive Director ADNP Kids Research Foundation |
 Shoshana Shendelman , PhD Founder & CEO Applied Therapeutics |  Lydia Shenouda , PharmaD Sr. Scientific Director, Global Medical Affairs Novartis Gene Therapies |  Rachel Sher Vice President, Policy and Regulatory Affairs NORD |
 Oodaye Shukla Eversana |  Mark Sleeper Cystic Fibrosis Foundation |  Paul Solari Global Medical Lead, Hemophilia BioMarin Pharmaceutical Inc |
 Shafali Spurling Jeste , MD, FAAN Associate Professor in Psychiatry, Neurology and Pediatrics NORD Board Member UCLA David Geffen School of Medicine Los Angeles, CA | Heather Stone Health Science Policy Analyst Food & Drug Administration |  Theresa Strong , PhD Director of ResearchPrograms Foundation for Prader-Willi Research |
 Kathleen Sullivan , MD, PhD Professor of Pediatrics, Wallace Chair of Pediatrics Division of Allergy Immunology CHOP (Children's Hopsital of Philadelphia) | Marshall Summar , MD Division Chief, Genetics and Metabolism, Director, Rare Disease Institute Children's National |  Danyelle Sun Wisconsin Rare Action Network Volunteer State Ambassador NORD |
 Phillip Tai , MD Assistant Professor, Director VIDE Program Horae Gene Therapy Center, Department of Microbiology and Physiological Systems University of Massachusetts Medical School |  Brooke Thomas Rare Action Network, NORD |  Lisa Anne Thompson Taylor Chief Executive Officer Board Veritas |
 Laura Trutoiu , PhD Director of Research Association for Creatine Deficiencies |  Karmen Trzupek , MS, CGC Director, Clinical Trial Services Director, Ocular & Rare Disease Genetics Services InfomedDNA |  Charles Venditti , MD, PhD Head, Organic Acid Research Section Senior Investigator, National Human Genome Research Institute National Institutes of Health |
 Vanessa Vogel-Farley Executive Director Dup15q Alliance |  Ashley Ward , MD Senior Director Clinical Development Foundation Medicine Inc. |  Monica Webb Hooper , PhD Deputy Director National Institute on Minority Healh and Health Disparities National Institutes of Health |
 Durhane Wong-Rieger , PhD President and CEO Canadian Organization for Rare Disorders |  Mark Yale Executive Director International Pemphigus and Pemphigoid Foundation (IPPF) |  Kate Zhang , PhD VP of Biological Development Editas Medicine |
