 Amanda Aikulola President Dysautonomia Support Network |  Aishwarya Arjunan Clinical Product Specialist Myriad Women’s Health |  Chris Austin MD Director, National Center for Advancing Translational Sciences (NCATS) National Institutes of Health (NIH) |
 Erica Barnes Minnesota Rare Action Network® Ambassador NORD |  Terry Jo V. Bichell, MPH, PhD Tennessee Rare Action Network® Ambassador NORD |  Lara Bloom Executive Director, International The Ehlers-Danlos Society |
 John Boyle President and CEO Immune Deficiency Foundation |  Patrick Collins Senior Director, Global Healthcare Policy and External Affairs CSL Behring |  Marie Conley Founder The Conley Cushing’s Disease Fund and Interim Chairman, PA Rare Disease Advocacy Council |
 Joslyn Crowe Executive Director National Neimann-Pick Disease Foundation | Elizabeth Dannenberg Patient |  Debbie Drell Director of Membership NORD |
 Eric Dube President and Chief Executive Officer Retrophin |  Tim Ehrhard Director of Information Technology NORD |  Natacha Esber |
 Deborah Fowler (Settig) President and Founder Soft Bones |  Jennifer Fox Cohead, Health Care Investment Banking Citibank |  Beverley Francis-Gibson MA President and Chief Executive Officer Sickle Cell Disease Association of America |
 Jim Geraghty formerly Third Rock Ventures | Susan Gregurick, PhD Associate Director for Data Science National Institute of General Medical Sciences, NIH |  Scott Gottlieb, MD American Enterprise Institute |
| Stefan Gross, PhD Director, Enzymology Agios Pharmaceuticals | Moira A. Gunn, PhD Associate Professor University of San Francisco | Patricia Jones, DrPH Program Director NCATS, NIH |
| Linda Hageman, RN Executive Director American Multiple Endocrine Neoplasia | John Hopper President / Executive Director Fibrolamellar Cancer Foundation |  Neil Horikoshi CEO and Executive Director Aplastic Anemia and MDS International Foundation (AAMDSIF) |
 Philip Katz Partner Hogan Lovells US LLP | Lucas Kempf, MD Associate Director, Rare Diseases Program, CDER, Office of New Drugs FDA | Andrei Kindzelski, MD, PhD Program Director National Heart, Lung and Blood Institute, NIH |
 Sharon King NC Advisory Council |  Camilla Krogh Lauritzen LEO Pharma A/S | Steven Lemery, MD Associate Deputy Director Division of Oncology Products, FDA |
| Nick Leschly Chief bluebird bluebird bio |  Will Lewis President and Chief Executive Officer Insmed |  Peter Marks, MD, PhD Director, Center for Biologics Evaluation and Research (CBER) Food and Drug Administration (FDA) |
 Janet Maynard, MD, MHS Director, Office of Orphan Products Development FDA |  Pooja Merchant Head, Patient Partnerships and Engagement Oncology Global Medical Affairs Bayer Pharmaceuticals |  Kelly Mercier, PhD Director of Medical and Scientific Affairs Inivata Limited |
| Theresa Mullin Associate Director for Strategic Initiatives CDER, FDA |  Francois Nader, MD, MBA Chairman Acceleron Pharma |  Gina Parziale |
 Tai Pasquini |  Steven D. Pearson, MD, MSc Founder and President Institute for Clinical and Economic Review (ICER) | Vasum Peiris, MD Chief Medical Officer Pediatrics and Special Populations, Center for Devices and Radiological Health (CDRH), FDA |
 Denise Perry Associate Director Clinical Laboratory, Illumina |  Karen Pignet-Aiach Founder, Chief Executive Officer and Board of Directors Chairperson Lysogene |  Wayne Pines President, Health Care APCO Worldwide |
 Amy Price Rarallel, LLC | Tejashri Purohit-Sheth, MD Director Division of Clinical Evaluation and Pharmacology Toxicology (DCEPT), CBER, FDA |  Debra Regier MD, PhD Children’s National Medical Center |
| Lora Reineck, MD Program Director National Heart, Lung and Blood Institute, NIH |  John Reynders Vice President, R&D Strategy, Program Management and Data Sciences Alexion |  Jack Rollins Senior Policy Analyst National Association of Medicaid Directors |
 Dawn Rotellini Senior Vice President, Program Development National Hemophilia Foundation |  Mark Rothera President and CEO Orchard Therapeutics |  Peter L. Saltonstall President and Chief Executive Officer NORD |
| Bhaskar Sambasivan President, Patient Services and Chief Strategy Officer Eversana |  Nina Schor, MD Deputy Director NINDS, NIH |  Geetha Senthil, PhD Health Scientist Administrator Office of Genomic Research Coordination, NIH |
| Patricia Seymour CCRC, MA, CIP |  Michael Sherman Chief Medical Officer Harvard Pilgrim |  Norman E. “Ned” Sharpless, MD Acting Commissioner FDA |
 David Scheer President Scheer & Company, Inc. | Jeffrey Shuren, MD, JD Director Center for Devices and Radiological Health, FDA |  Oodaye Shukla Chief Data and Analytics Officer HVH Precision Analytics |
 Eric Sid, MD Presidential Management Fellow NIH | Christine Simmon Senior Vice President, Policy and Strategic Alliances Executive Director Biosimilars Council, Association for Accessible Medicines |  Lisa Sniderman King, MSc, CGC Interim Head, Medical Diagnostics and Strategic Partnerships Sanofi Genzyme |
| Susan Spinosa Patient | Peter Stein, MD Director Office of New Drugs, CDER, FDA |  Kristin Stephenson Chief Policy and Community Engagement Officer Muscular Dystrophy Association |
 Holly Tabor Associate Professor of Medicine Stanford University Medical Center |  Kalahn Taylor-Clark, PhD, MPH Global Head, Patient Solutions Sanofi Medical | John F. Tisdale, MD Senior Investigator National Heart, Lung and Blood Institute, NIH |
| R. Nolan Townsend Regional President, North America Rare Disease Business Pfizer |  Stephanie Uder Vice President Product Management Accredo Specialty Pharmacy |  Jodie Vento Chair, NSGC Access and Services Committee Children's Hospital Pittsburgh |
 Janet Woodcock, MD Director, Center for Devices and Radiological Health FDA |  Brad Wong President and Chief Executive Officer Pulmonary Hypertension Association | Neil Versel Board Member Multiple System Atrophy Coalition |
 Benjamin Yerxa, PhD Chief Executive Officer Foundation for Fighting Blindness |
