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Archives for: April 25th, 2018

Chris Ulmer: 2018 Rare Impact Award Honoree

Written by Lisa Sencen on April 25, 2018

 

2018 Rare Impact Award Honoree, Chris Ulmer

“Every time I meet someone new, I am focused on going into the interaction with an open mind and accepting heart,” says Chris Ulmer, co-founder and front man behind the viral internet video project, Special Books by… Read More

35 Ways to Celebrate the 35th Anniversary of NORD

Written by Jennifer Huron on March 5, 2018

2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary.  For the past 35 years, NORD has taken pride in being the rare disease community’s biggest advocate.  Our policy, research and other efforts have played a significant role over the years, advocating for… Read More