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Archives for: March 7th, 2018

Another Successful Rare Disease Day®

Written by Lisa Sencen on March 7, 2018

Thank you to our rare disease partners and every person who worked to heighten awareness on Rare Disease Day® in 2018.  On this day, everyone RDD-LOGO-18-stickycomes together globally to bring attention to all 7,000 rare diseases that combined affect 30… Read More

Join Us for Rare Disease Day®

Written by Lisa Sencen on December 21, 2017
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Eleven Major Patient Groups Outline Joint Position on Health Care Reform

Written by Jennifer Huron on March 6, 2017

Washington, D.C., March 6, 2017 – A coalition of eleven nonpartisan patient groups today laid out a joint set of goals they want Congress to focus on as it considers changes to the Affordable Care Act. The coalition includes these organizations: American Cancer Society Cancer Action Network, American Diabetes Association,… Read More

Alone we are rare. Together we are strong.®

Copyright ©2019 NORD - National Organization for Rare Disorders, Inc. All rights reserved. NORD is a registered 501(c)(3) charity organization. Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.