Written by Valaree DonFrancesco on February 23, 2021
Washington, DC, February 23, 2021 — Today the National Organization for Rare Disorders (NORD®) announced this year’s Rare Impact Award honorees. These outstanding individuals, organizations and industry innovators will be honored for their exceptional work benefiting the rare disease community in a virtual event streaming on June 28, 2021 at… Read More
Written by Lisa Sencen on May 20, 2019

The Platelet Disorder Support Association (PDSA) is dedicated to enhancing the lives of people with Immune Thrombocytopenia (ITP) and other platelet disorders through education, advocacy, research and support. ITP is the most common autoimmune bleeding disorder, affecting children and adults. Patients with ITP face a complex set of… Read More
Written by Lisa Sencen on May 31, 2018
On Thursday, May 17 at the Andrew W. Mellon Auditorium in Washington, D.C. the rare disease community came together to celebrate NORD’s 35th Anniversary and to recognize the amazing accomplishments of the 2018 honorees during NORD’s 35th Anniversary Celebration presenting… Read More
Written by Lisa Sencen on April 25, 2018
The GBS|CIDP Foundation International, one of the first member organizations of NORD, works… Read More