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Archives for: June 27th, 2017

NORD Issues Statement in Response to Delay in Consideration of the Senate Better Care Reconciliation Act

Written by Christina Jensen on June 27, 2017

Washington, D.C., June 27, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to the delay in consideration of the Senate Better Care Reconciliation Act:

“Today, Senate Leadership announced they will not hold a… Read More

NORD Issues Statement on the Better Care Reconciliation Act of 2017

Written by Christina Jensen on June 22, 2017

Washington, D.C., June 22, 2017 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the release of the Senate Leadership’s Better Care Reconciliation Act of 2017 discussion draft:

“Senate Leadership today released a discussion draft of the Better… Read More

Protecting Your Healthcare Coverage

Written by Christina Jensen on June 20, 2017
Healthcare Coverage

The new administration and Congress are re-examining the United States health insurance system with the goal of repealing the Affordable Care Act, and replacing it with a new system.

Before the Affordable Care Act was enacted in 2010, rare disease patients faced discriminatory insurance practices due to their pre-existing condition. Patients… Read More

NORD Issues Statement on Today’s Passage of the American Health Care Act

Written by Christina Jensen on May 4, 2017

Washington, D.C., May 4, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to the passage of the American Health Care Act:

“Today the House of Representatives passed American Health Care Act (AHCA). We… Read More

Staying Focused on What Really Matters About the ACA

Written by Peter L Saltonstall on November 4, 2013

Despite the current focus on logistical problems associated with the rollout of the Affordable Care Act, we must not forget that this law includes some important insurance reforms that were desperately needed, such as: (more…)