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Archives for: September 19th, 2017

NORD Issues Statement Opposing the “Graham-Cassidy” ACA Replacement Plan

Written by Christina Jensen on September 19, 2017

The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement opposing the “Graham-Cassidy” plan to repeal and replace the Affordable Care Act (ACA):

“The Senate is currently considering a proposal put forward by Senators Graham, Cassidy, Heller,… Read More

Protecting Your Healthcare Coverage

Written by Christina Jensen on September 18, 2017
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The new administration and Congress are re-examining the United States health insurance system with the goal of repealing the Affordable Care Act, and replacing it with a new system.

Before the Affordable Care Act was enacted in 2010, rare disease patients faced discriminatory insurance practices due to their pre-existing condition. Patients… Read More

The BCRA and Healthcare Reform: NORD’s Latest Update

Written by Paul Melmeyer on July 20, 2017

A note from Paul Melmeyer, NORD’s Director of Federal Policy, on where healthcare reform stands as of today and how to get involved.


As part of our “Days of Action to Protect Your Healthcare Coverage” campaign, we want to be sure that you are up-to-date on the latest… Read More

NORD Issues Statement in Response to Delay in Consideration of the Senate Better Care Reconciliation Act

Written by Christina Jensen on June 27, 2017

Washington, D.C., June 27, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to the delay in consideration of the Senate Better Care Reconciliation Act:

“Today, Senate Leadership announced they will not hold a… Read More

NORD Issues Statement on the Better Care Reconciliation Act of 2017

Written by Christina Jensen on June 22, 2017

Washington, D.C., June 22, 2017 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the release of the Senate Leadership’s Better Care Reconciliation Act of 2017 discussion draft:

“Senate Leadership today released a discussion draft of the Better… Read More