Written by Valaree DonFrancesco on July 17, 2020

At the head of the herd is… Taylor Kane, Founder and President, Remember the Girls
Taylor advocates for those living as… Carriers of all X-linked diseases
Taylor is located in… Mount Laurel, New Jersey
Taylor most frequently checks her… Twitter page
How Taylor got here… In 2001, when I was three-years-old, my dad… Read More
Written by Valaree DonFrancesco on September 5, 2018
One of the unique aspects of the 2018 NORD Rare Diseases & Orphan Products Breakthrough Summit is its theme, “A New Era of Patient-Focused Innovation,” which we will be examining from a variety of perspectives. Kicking off the Summit will be the Patient/Caregiver Opening Address featuring a panel of… Read More
Written by admin on June 7, 2013
Summer is right around the corner, which means hot days, grilling, more time outside, and of-course the inevitable rainy-day stuck inside. In preparation for those days, I am trying to compile a list of movies that could make up a “rare disease film festival.” Read More