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Archives for: August 26th, 2022

What Rare Disease Patient Advocacy Groups Are Doing to Mitigate the Effects of Disparities

Written by Rohan Narayanan on August 26, 2022

Rare disease patients experience inequities in diagnosis, care, and research due to a paucity of research, lack of treatments, complex needs for clinical care, and small and dispersed patient populations, among other reasons. Marginalized communities – like low-income, rural, communities of color, LGBTQ, and religious communities – experience additional barriers… Read More