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Archives for: March 7th, 2018

Another Successful Rare Disease Day®

Written by Christina Jensen on March 7, 2018

Thank you to our rare disease partners and every person who worked to heighten awareness on Rare Disease Day® in 2018.  On this day, everyone RDD-LOGO-18-stickycomes together globally to bring attention to all 7,000 rare diseases that combined affect 30… Read More

Join Us for Rare Disease Day®

Written by Christina Jensen on December 21, 2017
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Eleven Major Patient Groups Outline Joint Position on Health Care Reform

Written by Jennifer Huron on March 6, 2017

Washington, D.C., March 6, 2017 – A coalition of eleven nonpartisan patient groups today laid out a joint set of goals they want Congress to focus on as it considers changes to the Affordable Care Act. The coalition includes these organizations: American Cancer Society Cancer Action Network, American Diabetes Association,… Read More