Today, Tell Congress We Need #CuresNow
Written by Christina Jensen on June 7, 2016
Today, June 7, join rare disease advocates around the country and tell your Senators to support the Senate Cures Legislation. This month is the last chance for Senate Cures to pass before the Senate is out of session until after the November election.
Senate… Read More
RareAction continues to make strides around the country for the 1 in 10 Americans with rare diseases.
RareAction Network℠ Releases May/June State Policy Legislative Tracker
Written by Tim Boyd on May 31, 2016
RareAction continues to make strides around the country for the 1 in 10 Americans with rare diseases.In this version of the State Policy Legislative Tracker, there is an increase in the bills being supported… Read More
Tennessee State House Event
Written by Christina Jensen on March 1, 2016
Rare disease advocates have joined with the National Organization for Rare Disorders (NORD), the national sponsor of Rare Disease Day in the US, to organize this special event for legislators, legislative staff, the public and the media.
The purpose of this event is to raise awareness at the state level for… Read More
Today is Rare Disease Day®
Written by Jennifer Huron on February 29, 2016
On this day, join the 30 million Americans who are making the voice of rare diseases heard. Your participation on Rare Disease Day means more awareness and hope for 1 in 10 people and families across the country, and others… Read More