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Archives for: June 7th, 2016

Today, Tell Congress We Need #CuresNow

Written by Christina Jensen on June 7, 2016
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Today, June 7, join rare disease advocates around the country and tell your Senators to support the Senate Cures Legislation. This month is the last chance for Senate Cures to pass before the Senate is out of session until after the November election.
Senate… Read More

Tennessee State House Event

Written by Christina Jensen on March 1, 2016

Rare disease advocates have joined with the National Organization for Rare Disorders (NORD), the national sponsor of Rare Disease Day in the US, to organize this special event for legislators, legislative staff, the public and the media.

The purpose of this event is to raise awareness at the state level for… Read More

Today is Rare Disease Day®

Written by Jennifer Huron on February 29, 2016

rdd-social-profileOn this day, join the 30 million Americans who are making the voice of rare diseases heard. Your participation on Rare Disease Day means more awareness and hope for 1 in 10 people and families across the country, and others… Read More