Written by Christina Jensen on June 7, 2016
Written by Tim Boyd on May 31, 2016
Written by Christina Jensen on March 1, 2016
Rare disease advocates have joined with the National Organization for Rare Disorders (NORD), the national sponsor of Rare Disease Day in the US, to organize this special event for legislators, legislative staff, the public and the media.
The purpose of this event is to raise awareness at the state level for… Read More
Written by Jennifer Huron on February 29, 2016
On this day, join the 30 million Americans who are making the voice of rare diseases heard. Your participation on Rare Disease Day means more awareness and hope for 1 in 10 people and families across the country, and others… Read More