Affordable Care Act Archives - NORD (National Organization for Rare Disorders)

Patient Advocates Warn Against New Insurance & PBM Policy That Increases Patient Out-of-Pocket Drug Costs

Written by Lisa Sencen on October 11, 2018

NORD’s Director of State Policy Tim Boyd participated in a press briefing on copay accumulators yesterday, which was followed by the issuance of the following press release that includes links to further information on this important topic.

PATIENT ADVOCATES WARN AGAINST NEW INSURANCE & PBM POLICY… Read More

NORD 35th Anniversary Blog Series: 2010-2018 (Present)

Written by Jennifer Huron on September 6, 2018

2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary. For the past 35 years, NORD has taken pride in being the rare disease community’s biggest advocate. Our policy, research and other efforts have played a significant… Read More

NORD Issues Statement in Response to Congressional Consideration of the Tax Cuts and Jobs Act Conference Report

Written by Lisa Sencen on December 18, 2017

Washington, D.C., December 18, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to the upcoming congressional consideration of the Tax Cuts and Jobs Act Conference Report:

Read More

Webinar on Affordable Care Act Open Enrollment: What You Need to Know

Written by Lisa Sencen on November 15, 2017

Wednesday, November 15

7:00 p.m. EST

With the December 15th deadline to select an Affordable… Read More

NORD Issues Statement on Senate Leadership’s Recent Update on “Graham-Cassidy” Proposal

Written by Lisa Sencen on September 26, 2017

Washington, D.C., September 26, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the latest effort to repeal and replace the Affordable Care Act:

“Senate Leadership announced today that they will not proceed with a… Read More

1
2
3
…
5
Next >

Archives for: October 11th, 2018