Written by Christina Jensen on June 27, 2017
Washington, D.C., June 27, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to the delay in consideration of the Senate Better Care Reconciliation Act:
“Today, Senate Leadership announced they will not hold a… Read More
Written by Christina Jensen on June 22, 2017
Washington, D.C., June 22, 2017 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the release of the Senate Leadership’s Better Care Reconciliation Act of 2017 discussion draft:
“Senate Leadership today released a discussion draft of the Better… Read More
Written by Christina Jensen on May 4, 2017
Washington, D.C., May 4, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to the passage of the American Health Care Act:
“Today the House of Representatives passed American Health Care Act (AHCA). We… Read More
Written by Jennifer Huron on September 22, 2016
More than 300 organizations join forces to ask Congress to provide robust, sustained, and predictable budget increases for the NIH
Washington, D.C., September 22, 2016—… Read More
