Written by Laura Mullen on October 23, 2019

Health and Human Services Secretary Alex Azar speaking at the NORD Summit on October 22, 2019
Washington, DC, October 23, 2019–Earlier this week, the National Organization for Rare DisordersⓇ (NORD) broke previous records with its 2019 Rare Diseases & Orphan Products Breakthrough SummitRead More
Written by Laura Mullen on June 15, 2018
Washington, D.C., June 15, 2018—On Wednesday, staff from the National Organization for Rare Disorders (NORD) met with Health and Human Services (HHS) Secretary Alex Azar to discuss the needs of rare disease patients. The meeting covered orphan drug innovation, growing patient involvement at the Food and Drug Administration… Read More
Written by Laura Mullen on May 15, 2018
The National Organization for Rare Disorders (NORD) today issued the following statement in response to American Patients First, the Trump Administration Blueprint to Lower Drug Prices and Reduce Out-of-Pocket Costs:
Patients with rare diseases are frequently disproportionately affected by high drug prices. Rare diseases tend to be… Read More
Written by Laura Mullen on January 26, 2018
Washington, D.C., January 26, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement on the confirmation by the U.S. Senate of Alex Azar, as Secretary of the Department of Health and Human Services (HHS):
“We at the National Organization… Read More
Written by Lisa Sencen on November 13, 2017
Washington, D.C., November 8, 2017 — Peter Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement today in support of Alex Azar’s nomination for Secretary of the Department of Health and…
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