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Archives for: July 20th, 2017

The BCRA and Healthcare Reform: NORD’s Latest Update

Written by Rose Gallagher on July 20, 2017

A note from Paul Melmeyer, NORD’s Director of Federal Policy, on where healthcare reform stands as of today and how to get involved.

As part of our “Days of Action to Protect Your Healthcare Coverage” campaign, we want to be sure that you are up-to-date on the latest… Read More

NORD Issues Statement in Response to Delay in Consideration of the Senate Better Care Reconciliation Act

Written by Lisa Sencen on June 27, 2017

Washington, D.C., June 27, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to the delay in consideration of the Senate Better Care Reconciliation Act:

“Today, Senate Leadership announced they will not hold a… Read More