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Archives for: April 7th, 2021

Ray Stevens is Taking Rare Disease Awareness to New Heights

Written by Valaree DonFrancesco on April 7, 2021

In 2001, Ray was inspired by a family he met whose daughter was diagnosed with phenylketonuria (PKU). He translated his academic knowledge into clinical treatments and was able to help create two new medicines for this devastating rare disease. Then in 2007, his daughter, who was four years old at… Read More

High-School Students Raise Awareness

Written by admin on May 29, 2013

Today, members of the NORD staff had the opportunity to meet a group of high-school advocates who are already making a difference to help raise awareness for rare diseases. (more…)