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Archives for: March 27th, 2018

Neurology Reviews® and NORD Publish the 2018 Rare Neurological Disease Special Report

Written by Laura Mullen on March 27, 2018

 

Parsippany – March 26, 2018 – The 2018 Rare Neurological Disease Special Report has been published by Neurology Reviews in collaboration with NORD, the National Organization for Rare Disorders, the leading independent nonprofit representing the 30 million Americans with rare diseases.

 Neurology Reviews is pleased to provide the most current information and news… Read More

Rare Diseases & Orphan Products Breakthrough Summit Speakers

Written by Jennifer Huron on October 5, 2016

RareSummit_Logo_RGB_smallWashington, D.C., October 5, 2016 – NORD, the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today announced the three keynote speakers for its 2016 Rare Diseases & Orphan Products Breakthrough Summit to be held Oct. 17-18… Read More

2015 Portraits of Courage Honoree, Tony Ferrandino

Written by Jennifer Huron on April 28, 2015

“I tell my story because it makes people realize how lucky they are in life, and hug their kids a little bit tighter at night.”

These are the courageous words of Tony Ferrandino, who lost his son, Drew, to Batten Disease in September 2014.  He and his wife, Katie, and their… Read More