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Archives for: September 15th, 2022

Introducing August: August’s Behçet’s Journey

Written by Julie Ostroff on September 15, 2022
August smiling at camera in striped shirt.

Introducing August

My name is August Rocha, and I am an adopted, Chinese-American, transgender TikTok content creator living with Behçet’s disease. While I’ve been symptomatic all my life, I wasn’t diagnosed with Behçet’s until age 21, in the summer of 2016. 

Behçet’s disease is a rare form of… Read More

Ramona’s Story in Honor of Rare Disease Day

Written by Valaree DonFrancesco on February 22, 2021

I am a patient diagnosed with autoimmune neutropenia and AA amyloidosis (renal) which affects my kidneys. My symptoms include fatigue, shortness of breath, low white blood cells, anemia and stress. I have also been suspected of Behcet’s disease, but doctors have… Read More