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Archives for: March 15th, 2017

Beth Nguyen, R.N. – 2017 Rare Impact Award Honoree

Written by on March 15, 2017

2017 Honoree
Rare Impact Awards

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Beth Nguyen, R.N.

Mother, wife, nurse, patient, advocate, and leader; Beth Nguyen wears multiple hats, and not one loosely.

In 2007, before she began to experience health problems, Beth had a job she loved as… Read More

House to Vote on New Version of 21st Century Cures Act Tomorrow

Written by Jennifer Huron on November 29, 2016

We are excited to announce that U.S. lawmakers have finally reached an agreement on the 21st Century Cures Act, a game-changer for patients with rare diseases. This agreement comes more than one year after the House passed its original version of the bill. The first vote is expected to take place… Read More

Alone we are rare. Together we are strong.®