Better Care Reconciliation Act of 2017 Archives - NORD (National Organization for Rare Disorders)

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Archives for: June 22nd, 2017

NORD Issues Statement on the Better Care Reconciliation Act of 2017

Written by Christina Jensen on June 22, 2017

Washington, D.C., June 22, 2017 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the release of the Senate Leadership’s Better Care Reconciliation Act of 2017 discussion draft:

“Senate Leadership today released a discussion draft of the Better… Read More

NORD Converges on Capitol Hill for Rally for Medical Research Hill Day to Advocate for Increased Funding for the National Institutes of Health (NIH)

Written by Jennifer Huron on September 22, 2016

More than 300 organizations join forces to ask Congress to provide robust, sustained, and predictable budget increases for the NIH

Washington, D.C., September 22, 2016—… Read More

Tweets From NORD

Houston, we have lift off! Registration is now open for the 2019 #NORD #LivingRareForum happening June 21-23 in Hou… https://t.co/2skPHMF3iz2 hours ago
RT @RareAction: Great article on the importance of advocacy and the #OrphanDrug Act for the #raredisease community by our volunteer PA Stat…4 hours ago
Did you hear? @US_FDA will host a public meeting "Patient Perspectives on the Impact of Rare Diseases: Bridging the… https://t.co/HbzmGnMxEJ4 hours ago
The annual Wilson Disease association conference will be on May 4th in NYC with 19 Internationally renown speakers… https://t.co/jyp6q2328U5 hours ago

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Copyright ©2019 NORD - National Organization for Rare Disorders, Inc. All rights reserved. NORD is a registered 501(c)(3) charity organization. Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.