Better Care Reconciliation Act of 2017 Archives - NORD (National Organization for Rare Disorders)

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Archives for: June 22nd, 2017

NORD Issues Statement on the Better Care Reconciliation Act of 2017

Written by Christina Jensen on June 22, 2017

Washington, D.C., June 22, 2017 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the release of the Senate Leadership’s Better Care Reconciliation Act of 2017 discussion draft:

“Senate Leadership today released a discussion draft of the Better… Read More

NORD Converges on Capitol Hill for Rally for Medical Research Hill Day to Advocate for Increased Funding for the National Institutes of Health (NIH)

Written by Jennifer Huron on September 22, 2016

More than 300 organizations join forces to ask Congress to provide robust, sustained, and predictable budget increases for the NIH

Washington, D.C., September 22, 2016—… Read More

Tweets From NORD

The time is now...to mark your calendars for our most highly anticipated event of the year, the #NORDSummit! Stay t… https://t.co/xt8D67aenM22 hours ago
May 17-19 OMF Warriors will wear eye patches to raise awareness & start a convo about OM & how important it is to g… https://t.co/pHVJpgIfDpyesterday
The #LivingRareForum is just about one month away, June 21-23 in Houston! Don't miss this opportunity full of learn… https://t.co/uPfcYdr1JVyesterday
Ppl living w/ #rarediseases must be able to afford therapies that come to market. The high cost of Rx drugs has a d… https://t.co/2OPWKK3C5Byesterday

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Copyright ©2019 NORD - National Organization for Rare Disorders, Inc. All rights reserved. NORD is a registered 501(c)(3) charity organization. Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.