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Archives for: April 17th, 2017

Boston Marathon

Written by Christina Jensen on April 17, 2017

Running for Rare, NORD’s signature charity marathon team, will be participating in the 2017 Boston Marathon. Applications for this marathon are closed.


About the Team

When you join Running for Rare, you are joining a group of individuals who are passionate and committed to an important cause. Running for Rare offers… Read More

Running for Rare Marathon Team Expands Under NORD

Written by Jennifer Huron on March 11, 2016

running4rare_NORDThe Running for Rare marathon team will expand under new governance with the National Organization for Rare Disorders (NORD), the leading independent nonprofit representing all people with rare diseases and disorders. NORD will take over the program, which uses running… Read More

NORD Fundraiser: Paint for a Cause

Written by Christina Jensen on March 10, 2016

r4r-muse-paintbar-fundraiser

If you are local to Foxborough, Massachusetts, we invite you to the Muse Paintbar for a fun night of painting and fundraising for the Running for Rare Marathon team supporting NORD. 40% of the proceeds will go towards Martha’s fundraising goal for running the… Read More

Join the Running for Rare Team!

Written by Christina Jensen on January 18, 2016

For the ninth consecutive year, runners will join together to help raise awareness for rare diseases while fundraising to support the NORD Undiagnosed Diseases Network (UDN) Patient Assistance Program.

The 2016 team is looking for runners to join the Boston, Providence Marathon and half Marathon teams, as well as RARE Community… Read More