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Archives for: April 22nd, 2022

The Running for Rare Team Crossed Another Finish Line

Written by Valaree DonFrancesco on April 22, 2022

On Monday, April 18, seven members of NORD’s Running for Rare team stretched their legs and put their sneakers to the pavement to take on the Boston Marathon! During the race, NORD staff members Jaime Pacheco, Ed Neilan, Julie Manus, Amanda Thomas and 36 individuals were present and could be… Read More

Running for Rare Marathon Team Expands Under NORD

Written by Jennifer Huron on March 11, 2016

running4rare_NORDThe Running for Rare marathon team will expand under new governance with the National Organization for Rare Disorders (NORD), the leading independent nonprofit representing all people with rare diseases and disorders. NORD will take over the program, which uses running… Read More

Join the Running for Rare Team!

Written by Lisa Sencen on January 18, 2016

For the ninth consecutive year, runners will join together to help raise awareness for rare diseases while fundraising to support the NORD Undiagnosed Diseases Network (UDN) Patient Assistance Program.

The 2016 team is looking for runners to join the Boston, Providence Marathon and half Marathon teams, as well as RARE Community… Read More