Capitol Hill Archives - NORD (National Organization for Rare Disorders)

NORD Highlights New Era of Innovation and Public Health Awareness in Virtual 2020 Rare Diseases and Orphan Products Breakthrough Summit

Written by Laura Mullen on October 9, 2020

Washington, DC, October 9, 2020—On October 8 and 9, the National Organization for Rare Disorders (NORD®) virtually hosted the 2020 Rare Diseases and Orphan Products Breakthrough Summit, the first time the organization representing over 25 million Americans impacted… Read More

NORD’s Rare Action Network Mobilized for a Successful Hill Day

Written by Laura Mullen on October 29, 2019

On the heels of the 2019 Rare Diseases and Orphan Products Breakthrough Summit, NORD’s Rare Action Network (RAN) Volunteer State Ambassadors made their way to Capitol Hill on October 23, 2019, to tell their stories and show their stripes. Ambassadors from 20 states… Read More

Making Sure The Rare Disease Patient Voice is Heard on Capitol Hill

Written by Mary Dunkle on March 24, 2014

NORD recently hosted a Capitol Hill briefing on the topic “Rare Diseases in a Changing Healthcare Landscape”. Keeping our elected officials informed… Read More

Archives for: October 9th, 2020