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Archives for: November 1st, 2022

Highlights from the 2022 NORD Breakthrough Summit

Written by Rohan Narayanan on November 1, 2022
Three people stand in front of the NORD logo - Peter Saltonstall, Robert Califf, and Pam Gavin

Last month, more than 830 enthusiastic attendees gathered in-person (and many more virtually) for the 2022 NORD Rare Diseases and Orphan Products Breakthrough Summit to address and take action on the opportunities and challenges facing the rare disease community. Here are a few highlights:

FDA Commissioner Presents Keynote Address

FDA Commissioner Robert… Read More

NORD Breakthrough Summit 2022: Highly Anticipated Rare Disease Conference Announces Keynote Speakers, Session Topics

Written by Rohan Narayanan on August 18, 2022

NORD’s annual rare disease conference on October 17 and 18 in Washington, DC will showcase two days of insightful speakers, discussions, and in-person connection

WASHINGTON, DC, August 18, 2022 – The NORD® Rare Diseases & Orphan Products Breakthrough Summit® – the most highly anticipated, global rare disease conference of the year,… Read More

Jason and Nola’s Story in Honor of Rare Disease Day

Written by Valaree DonFrancesco on February 26, 2021

I am the parent of a four-year-old girl named Nola. She was diagnosed with distal 18q deletion at the age of 18 months. Caring for a child with a rare disease affects every aspect of daily life. I find myself having to be more attentive and always “on”… Read More