Written by Laura Mullen on February 26, 2020
This year, NORD has developed a brief video for Rare Disease Day featuring rare patients, caregivers and supporters sharing their thoughts on the importance of the day and relaying the rallying cry, “Show Your Stripes!”
Show Your Stripes takes its cue from the zebra, mascot of the… Read More
Written by Lisa Sencen on April 22, 2019
Tweetchat Coordinates
When: Monday, April 22, 1:00p.m. – 2:00p.m. ET
Tweetchat Hashtag: #lovingrarechat
Tweetchat Moderator from NORD: @RareDiseases
Tweetchat Moderator from Texas Children’s: @TexasChildrens
About
As a part of NORD’s mission to improve the lives of the 25-30 million Americans impacted by rare diseases, we are honored to…
Read MoreWritten by Lisa Sencen on January 21, 2016
Join us for a nationwide conversation about rare diseases on:
Tuesday, March 1, 2016
1:00 – 2:00 p.m. EST
In celebration of Rare Disease Day®, NORD will co-sponsor a tweetchat on the topic of rare diseases with Dr. Richard Besser, Chief of the ABC News… Read More
