Written by Rohan Narayanan on November 26, 2021
As we reach the holiday season, let us take time to celebrate and lift up the rare disease community. For this season of giving thanks, the National Organization for Rare Disorders (NORD) is sharing formerly exclusive, paid content from our 2021 virtual Living Rare, Living Stronger Patient and Family Forum…. Read More
Written by Rohan Narayanan on November 24, 2021
As we reach the holiday season at the end of another challenging but inspiring year, let us take time to celebrate and lift up the rare disease community. For this season of giving, the National Organization for Rare Disorders (NORD) is sharing formerly exclusive content from our 2021 virtual Living… Read More
Written by Rohan Narayanan on November 22, 2021
As we reach the holiday season at the end of another challenging but inspiring year, let us take time to celebrate and lift up the rare disease community. For this season of giving thanks, the National Organization for Rare Disorders (NORD) is sharing formerly exclusive, paid content from our 2021… Read More
Written by Valaree DonFrancesco on February 26, 2020
This year, NORD has developed a brief video for Rare Disease Day featuring rare patients, caregivers and supporters sharing their thoughts on the importance of the day and relaying the rallying cry, “Show Your Stripes!”
Show Your Stripes takes its cue from the zebra, mascot of the… Read More
Written by Lisa Sencen on January 21, 2016
Join us for a nationwide conversation about rare diseases on:
Tuesday, March 1, 2016
1:00 – 2:00 p.m. EST
In celebration of Rare Disease Day®, NORD will co-sponsor a tweetchat on the topic of rare diseases with Dr. Richard Besser, Chief of the ABC News… Read More