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Archives for: February 26th, 2020

NORD Debuts Rare Disease Day 2020 Video

Written by Laura Mullen on February 26, 2020

This year, NORD has developed a brief video for Rare Disease Day featuring rare patients, caregivers and supporters sharing their thoughts on the importance of the day and relaying the rallying cry, “Show Your Stripes!”

Show Your Stripes takes its cue from the zebra, mascot of the… Read More

Tweetchat on Rare Relationships, #lovingrarechat

Written by Lisa Sencen on April 22, 2019

 

Tweetchat Coordinates

When: Monday, April 22, 1:00p.m. – 2:00p.m. ET
Tweetchat Hashtag: #lovingrarechat
Tweetchat Moderator from NORD: @RareDiseases
Tweetchat Moderator from Texas Children’s: @TexasChildrens

About

As a part of NORD’s mission to improve the lives of the 25-30 million Americans impacted by rare diseases, we are honored to… Read More