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Archives for: April 20th, 2020

Update on NORD’s Recent Advocacy Work on COVID-19 for the Rare Community

Written by Laura Mullen on April 20, 2020

In this time of crisis and uncertainty, NORD’s policy team has been working to pursue policies at the federal and state levels to address COVID-19 related concerns critical to the rare disease community. 

Protecting Access to Necessary Medical Treatment During the Pandemic

Social distancing is critical for slowing… Read More

TAKE ACTION: Join NORD & Over 100 Patient Organizations in Supporting the RARE Act

Written by Lisa Sencen on April 18, 2018
An exciting new piece of legislation known as the RARE Act (Rare disease Advancement, Research, and Education Act) of 2018 (H.R.5115) was recently introduced by Congressmen Carson and Costello. This legislation would greatly help the rare disease community by:
  • Increasing rare disease research funding at the National Institutes of Health (NIH) by authorizing an additional… Read More