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Archives for: June 23rd, 2016

CdLS Biennial National Family Conference

Written by Lisa Sencen on June 23, 2016

Our biennial national family conference provides education and support to families of individuals with CdLS.conference2016

Attendees receive free head-to-toe consultations with experts from a range of medical and educational fields; attend workshops on legal concerns, educational issues and medical/behaviors challenges; and have… Read More

Seventh National CdLS Scientific & Educational Symposium

Written by Lisa Sencen on June 22, 2016

cdls-logoThe CdLS Scientific and Educational Symposium brings together physicians in various clinical disciplines, scientific researchers, teachers, and allied health professionals.


Through lectures, poster session and formal discussions, attendees will learn about medical and educational issues facing individuals with the syndrome, as well as… Read More

NORD Volunteer Sheds Light on CdLS for CdLS Awareness Day

Written by Lisa Sencen on May 9, 2015

Today is CdLS Awareness Day. Cornelia de Lange Syndrome (CdLS) is a genetic disorder present from birth, but not always diagnosed at birth. It causes a range of physical, cognitive and medical challenges and affects both genders equally ( Today’s awareness day for CdLS is to shed a light on… Read More