Centers for Disease Control Archives - NORD (National Organization for Rare Disorders)

NORD’s Peter L. Saltonstall on Coronavirus Prevention and Risk for the Rare Community

Written by Valaree DonFrancesco on March 5, 2020

As information on the coronavirus, which causes COVID-19, dominates the news, we want to share with you guidance from the Centers for Disease Control and Prevention (CDC). The National Organization for Rare Disorders (NORD) continues to monitor the situation with the rare community in mind. The severity of illness or… Read More

TAKE ACTION: Join NORD & Over 100 Patient Organizations in Supporting the RARE Act

Written by Lisa Sencen on April 18, 2018

An exciting new piece of legislation known as the RARE Act (Rare disease Advancement, Research, and Education Act) of 2018 (H.R.5115) was recently introduced by Congressmen Carson and Costello. This legislation would greatly help the rare disease community by:

Increasing rare disease research funding at the National Institutes of Health (NIH) by authorizing an additional… Read More

Archives for: March 5th, 2020

NORD’s Peter L. Saltonstall on Coronavirus Prevention and Risk for the Rare Community

Written by Valaree DonFrancesco on March 5, 2020

TAKE ACTION: Join NORD & Over 100 Patient Organizations in Supporting the RARE Act

Written by Lisa Sencen on April 18, 2018

Alone we are rare. Together we are strong.®