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Archives for: October 14th, 2015

Liam Cruz’ Diagnostic Journey

Written by Christina Jensen on October 14, 2015

On July 27, 2011 the Cruz family welcomed a gorgeous baby boy, Liam, to their lives. Weighing 7lbs and 19 inches long, he was born at Greenwich Hospital in Greenwich, CT and discharged with a clean bill of health.

At the age of 6 months, the family began to notice that… Read More

What are Your Favorite Rare Disease Movies?

Written by admin on June 7, 2013

Summer is right around the corner, which means hot days, grilling, more time outside, and of-course the inevitable rainy-day stuck inside. In preparation for those days, I am trying to compile a list of movies that could make up a “rare disease film festival.” Read More