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Archives for: March 20th, 2018

NORD Rare Action Network® 2018 State Report Card

Written by Christina Jensen on March 20, 2018
Washington, DC, March 20, 2018—A majority of states are not measuring up on legislative solutions that reduce the burden of rare diseases affecting 30 million Americans, according to a new report released today by the National Organization for Rare Disorders Rare Action Network® (NORD RAN). The 2018 “State Report Card”… Read More

Your Help is Needed to #SaveCHIP

Written by Christina Jensen on January 10, 2018
Today, advocates across the country are joining together to #SaveCHIP!
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NORD Announces Honorees for the 2017 Rare Impact Awards

Written by Jennifer Huron on March 15, 2017

ria_jointheconversation_dateWashington, D.C., March 15, 2017—The National Organization for Rare Disorders (NORD) today announced the people, organizations, and innovators who will be honored at the 2017 Rare Impact Awards on May 18 in Washington, D.C.

The Rare Impact Awards is a… Read More