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Archives for: October 7th, 2020

Telehealth: From Bogeyman to Clinical Practice

Written by Valaree DonFrancesco on October 7, 2020

On today’s show, our time’s enduring topic — No, not COVID, but it does make a distinct and necessary cameo on the show — No, we’re talking about Telehealth. Telemedicine. Tele–all the things. Perhaps even the telephone when required. Joining us are Dr. Natasha Shur, Medical… Read More

NORD Responds to AHIP Report on Orphan Drug Act

Written by Jennifer Huron on September 2, 2016

By Peter L. Saltonstall

One of the most successful pieces of legislation ever passed by the Congress is the Orphan Drug Act of 1983 (ODA).  It was intended to stimulate the research and development of new therapies for rare diseases, which were generally neglected by the research community and the drug… Read More