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Archives for: September 20th, 2018

Chat, Chew, and Be Challenged! Lunchtime Learning at the NORD Rare Summit

Written by Christina Jensen on September 20, 2018

Make your choice from this menu of thought-provoking, informative Lunch & Learn sessions available for attendees of the 2018 NORD Rare Summit. With only 25 days to go, be sure to save your seat at the table by registering for the Summit and choosing your lunch option now! Lunch &… Read More

Healthline and NORD Announce Recipients of 2018 Stronger Scholarships

Written by Laura Mullen on August 15, 2018

Washington, D.C., August 15, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, and Healthline Media, the second largest health information site with 90 million monthly visitors, have announced the recipients of the… Read More

Tweets From NORD

“I was able to meet and have dinner with one of my Peace Corps friends. We hadn’t seen each other since we left Rom… https://t.co/DLR6mgICIY22 hours ago
Did you advocate for #newbornscreening this week? Take action year round by becoming a member of #NORD @RareAction… https://t.co/kfVWKtZFiFyesterday
Friday, 9/20, you're invited to join #NORD & Fdn for Rare Blood Diseases (SZB) for an externally-led PFDD meeting o… https://t.co/KcAvdr2Q7yyesterday
#ICYMI: #NORD is inviting the public to share research with 800+ leaders in the #raredisease space at the 2019… https://t.co/QCo1HuMsjwyesterday

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Copyright ©2019 NORD - National Organization for Rare Disorders, Inc. All rights reserved. NORD is a registered 501(c)(3) charity organization. Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.