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Archives for: September 20th, 2018

Chat, Chew, and Be Challenged! Lunchtime Learning at the NORD Rare Summit

Written by Christina Jensen on September 20, 2018

Make your choice from this menu of thought-provoking, informative Lunch & Learn sessions available for attendees of the 2018 NORD Rare Summit. With only 25 days to go, be sure to save your seat at the table by registering for the Summit and choosing your lunch option now! Lunch &… Read More

Healthline and NORD Announce Recipients of 2018 Stronger Scholarships

Written by Laura Mullen on August 15, 2018

Washington, D.C., August 15, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, and Healthline Media, the second largest health information site with 90 million monthly visitors, have announced the recipients of the… Read More

Tweets From NORD

"With so much at stake, and so much hidden potential, physicians, researchers and the biomedical complex should kee… https://t.co/7u6oZuWnXV9 hours ago
.@HCUAmerica & @HcuNetworkAust announced the first recipient of their CBS deficiency global grants program – awardi… https://t.co/UuSHcCp9XU12 hours ago
#NORD created a Patient & Caregiver Resource Center for the #raredisease community. Visit our one-stop shop for res… https://t.co/7Y66m03NaD13 hours ago
Individuals across the country are sharing their stories about their journey w/ #raredisease in honor of… https://t.co/1MH2sdJJRq14 hours ago

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Copyright ©2019 NORD - National Organization for Rare Disorders, Inc. All rights reserved. NORD is a registered 501(c)(3) charity organization. Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.