CMTC-OVM Archives - NORD (National Organization for Rare Disorders)

Rare Disease Advocates and Supporters Share the Importance of Raising Awareness Ahead of Rare Disease Day 2022

Written by Rohan Narayanan on February 17, 2022

Organizations and individuals from across the country are partnering with NORD to help make a difference for rare disease patients and families on Rare Disease Day 2022

February 17, 2022, Washington, DC – Leading up to Rare Disease Day on Monday, February 28, the National Organization for Rare Disorders (NORD) is… Read More

CMTC-OVM

Written by Lisa Sencen on November 9, 2015

The CMTC-OVM is an organization based in The Netherlands that provides information and other services to those affected with, or working on, van Lohuizen syndrome, which is also known as cutis marmorata telangiectatica congenita (CMTC-OVM). On its web site and in its print materials, the organization provides information in English… Read More

Archives for: February 17th, 2022

Rare Disease Advocates and Supporters Share the Importance of Raising Awareness Ahead of Rare Disease Day 2022

Written by Rohan Narayanan on February 17, 2022

Organizations and individuals from across the country are partnering with NORD to help make a difference for rare disease patients and families on Rare Disease Day 2022

CMTC-OVM

Written by Lisa Sencen on November 9, 2015

Alone we are rare. Together we are strong.®