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Archives for: February 17th, 2022

Rare Disease Day: Riaan’s Story

Written by Maia Craig on February 17, 2022
A photo of Riaan and his mother

Leading up to #RareDiseaseDay on February 28, NORD is sharing stories from patients and caregivers impacted by rare disease. This week, we are sharing Riann’ s journey with Cockayne Syndrome and his family’s wishes for the rare disease community. If you want to share your rare… Read More