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Archives for: June 9th, 2022

Colorado Becomes 24th State to Establish a Rare Disease Advisory Council

Written by Rohan Narayanan on June 9, 2022

New RDAC will help educate the public, medical professionals, and government officials about rare diseases and identify solutions to improves the lives of those living with rare diseases

June 9, 2022, Denver, CO – Today, Governor Jared Polis signed Senate Bill 186 (SB 186) into law to create a Rare Disease… Read More

A Newborn Screening Reflection: Sarah’s Story

Written by Valaree DonFrancesco on September 15, 2020

September is Newborn Screening Awareness Month, and I’d like to share our family’s experience with it, and why we think every parent should know more about this incredible test, that looks for dozens of genetic disorders in babies that are not so easily apparent at birth.

My husband Chris and I… Read More