Written by Valaree DonFrancesco on December 12, 2019
Spinal Muscular Atrophy: Best Practices in Diagnosis and Management is a live educational webinar that will summarize clinical practice and consensus guidelines for the comprehensive management of spinal muscular atrophy (SMA). Strategies for incorporating new disease-modifying therapies for SMA into daily clinical practice will be highlighted.
This webinar is intended for pediatric neurologists, neurologists,… Read More
Written by Lisa Sencen on June 18, 2019
New program by the trusted voice and leader in the rare disease community aims to increase clinician preparedness and improve the care of patients living with rare diseases
BOSTON, MA and WASHINGTON, DC, June 18, 2019 – The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization… Read More
Written by Lisa Sencen on October 8, 2018
The National Organization for Rare Disorders is seeking a partner to collaborate on the development of educational resources for medical professionals. NORD has published a Request for Proposals inviting accredited CME providers to respond with proposals by November 16.
Written by Jennifer Huron on September 6, 2018
2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary. For the past 35 years, NORD has taken pride in being the rare disease community’s biggest advocate. Our policy, research and other efforts have played a significant… Read More