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Archives for: November 24th, 2021

One Father’s Barefoot 1,200 Mile Journey

Written by Valaree DonFrancesco on November 24, 2021

Chris Brannigan, a major in the British Army, took off his boots for a 1,200-mile barefoot walk down the eastern seaboard of the United States in an effort to raise funds for the creation of a gene therapy treatment that could help patients like his daughter Hasti, battling Cornelia de… Read More

Member Spotlight: CdLS Foundation

Written by Lisa Sencen on July 6, 2015

The Cornelia de Lange Syndrome Foundation (CDLSF) is a non-profit, family health organization. Established in 1981, the CdLS Foundation exists to ensure early and accurate diagnosis of the syndrome, and help people with CdLS and others with similar characteristics make informed decisions throughout their lifetime. To learn more about Cornelia de… Read More

NORD Volunteer Sheds Light on CdLS for CdLS Awareness Day

Written by Lisa Sencen on May 9, 2015

Today is CdLS Awareness Day. Cornelia de Lange Syndrome (CdLS) is a genetic disorder present from birth, but not always diagnosed at birth. It causes a range of physical, cognitive and medical challenges and affects both genders equally (cdlsusa.org). Today’s awareness day for CdLS is to shed a light on… Read More