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Archives for: April 20th, 2020

Update on NORD’s Recent Advocacy Work on COVID-19 for the Rare Community

Written by Laura Mullen on April 20, 2020

In this time of crisis and uncertainty, NORD’s policy team has been working to pursue policies at the federal and state levels to address COVID-19 related concerns critical to the rare disease community. 

Protecting Access to Necessary Medical Treatment During the Pandemic

Social distancing is critical for slowing… Read More

COVID-19 Resources for Non-profit Leaders and the Community

Written by Valaree DonFrancesco on March 20, 2020

The health and safety of those with rare diseases and their caregivers are always our top priorities at the National Organization for Rare Disorders (NORD). We know our members are working tirelessly to support their communities during this global crisis. Rare disease organizations have felt the impact of the coronavirus… Read More