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Archives for: May 7th, 2020

NORD Joins 400+ Groups to Prevent Discrimination During COVID-19 Triaging

Written by Valaree DonFrancesco on April 24, 2020

Between 25 and 30 million Americans have a rare disease, many of whom are disproportionately at risk of getting sick from COVID-19. According to the Centers for Disease Control and Prevention, in addition to older adults, people of any age who have serious underlying medical conditions… Read More

Update on NORD’s Recent Advocacy Work on COVID-19 for the Rare Community

Written by Valaree DonFrancesco on April 20, 2020

In this time of crisis and uncertainty, NORD’s policy team has been working to pursue policies at the federal and state levels to address COVID-19 related concerns critical to the rare disease community. 

Protecting Access to Necessary Medical Treatment During the Pandemic

Social distancing is critical for slowing… Read More