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Archives for: June 21st, 2021

Continuing the Conversation: FDA and CDC Leaders Discuss Vaccines and the Pandemic

Written by Rohan Narayanan on June 21, 2021

The National Organization for Rare Disorders (NORD), along with The ALS Association, the Cystic Fibrosis Foundation, and the Muscular Dystrophy Association recently partnered again to host a virtual conversation on COVID-19 vaccines and safety. The event featured leaders from the US Food and Drug Administration (FDA) and the Centers for Disease Control and Prevention (CDC) providing key updates and insights from the administration, as well as addressing frequently asked… Read More

COVID-19 Resources for Non-profit Leaders and the Community

Written by Valaree DonFrancesco on March 20, 2020

The health and safety of those with rare diseases and their caregivers are always our top priorities at the National Organization for Rare Disorders (NORD). We know our members are working tirelessly to support their communities during this global crisis. Rare disease organizations have felt the impact of the coronavirus… Read More