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Archives for: January 11th, 2022

Rare Disease Day: Finn’s Story

Written by Maia Craig on January 11, 2022
This is a photo of Finn.

Leading up to #RareDiseaseDay on February 28, NORD is sharing stories from patients and caregivers impacted by rare disease. This week, we are sharing Finn’s congenital muscular dystrophy (CMD) journey and his parent’s goal of connecting with others navigating a SELENON/SEPN1-related myopathy diagnosis. If you want… Read More