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Understanding Rare Disease
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What It Means To Be Undiagnosed
Find A Rare Disease Organization
Stay informed
Stories That Inspire
A Podcast For The Rare Disease Community
Rare Disease Day
Resource Library
Publications On Rare Disease
Patient stories
Read More
Living with a Rare Disease
Manage your care
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Managing Your Disease
We can help
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Speak To Someone at NORD
Rare Disease Center Of Excellence
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Explore Clinical Trials
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Caregiver Resources
You Are Not Alone.
Read More
Community Support
Where to start
Rare Diseases Defined
Financial & Medical Assistance
Call Center & Information Services
Bringing Together Your Community
Mentoring organizations
NORD Member List
Start a Rare Disease Organization
Membership Program
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Patient-Focused Drug Development
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Rare Disease Centers of Excellence
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Corporate Council
National Partnerships
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Diversity, Equity & Inclusion
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Learn More
Advancing Research
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List of Rare Diseases
Gene Therapy for Rare Disease
Find Clinical Trials & Research Studies
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Request for Proposals
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Data Standards for Rare Diseases
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Resources for Patients
Find a Rare Disease Care Center
Continuing Medical Education (CME)
Connect
IAMRARE
®
Program Powered by NORD
Rare Disease Cures Accelerator (RDCA-DAP)
Add Your Expertise
Featured publication
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