Data-Sharing Archives - NORD (National Organization for Rare Disorders)

NORD Announces Keynote Speakers for 2017 Rare Diseases and Orphan Products Breakthrough Summit

Written by Lisa Sencen on July 20, 2017

Washington, D.C. July 19, 2017 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, has announced two keynote speakers for its 2017 Rare Diseases and Orphan Products Breakthrough Summit, to be held October 16-17 in Washington, D.C.

The… Read More

State Report Card to Help People with Rare Diseases

Written by Jennifer Huron on December 13, 2016

Washington, D.C., December 13, 2016—A majority of states are not measuring up on legislative solutions that reduce the burden of rare diseases affecting 30 million Americans, according to a new report released today by the National Organization for Rare Disorders… Read More

Archives for: July 20th, 2017

NORD Announces Keynote Speakers for 2017 Rare Diseases and Orphan Products Breakthrough Summit

Written by Lisa Sencen on July 20, 2017

State Report Card to Help People with Rare Diseases

Written by Jennifer Huron on December 13, 2016

Alone we are rare. Together we are strong.®