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Archives for: September 25th, 2020

Voices of Rare Cancer: Jan’s Story

Written by Laura Mullen on September 25, 2020

My name is Jan and in January 2018 life changed for my husband and me as we knew it. I was on the operating room table to have gastric sleeve surgery. I had six months of intense and detailed medical tests prior to the surgery…. Read More

September is Newborn Screening Awareness Month

Written by Laura Mullen on September 1, 2020

A Personal Reflection from Stephanie Cozine, Delaware Rare Action Network Ambassador

Did you know that your baby is screened for different diseases depending on which state you live in?  That it’s possible your state doesn’t screen for a disease that it is recommended to? Do you know what your newborn is… Read More