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Archives for: February 22nd, 2021

Tara Z’s Story in Honor of Rare Disease Day

Written by Valaree DonFrancesco on February 22, 2021

I was diagnosed with stiff person syndrome (SPS) on a Monday night in October of 2017. The impact of my condition on my life has been tremendous. My symptoms started after I lost my former husband to suicide in 2014. My kids were eleven and… Read More

NORD Welcomes Prashant Goel as Vice President of Information Technology

Written by Valaree DonFrancesco on March 24, 2020

Washington, DC, March 24, 2020–The National Organization for Rare Disorders (NORD®) is pleased to welcome Prashant Goel as the new Vice President of Information Technology, based in the Danbury, CT office. Prashant, who joined NORD in February, leads a team of professionals with extensive knowledge of developing scalable enterprise-level systems,… Read More