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Archives for: July 29th, 2022

Rebekah’s Rare Story: How Mrs. Massachusetts Petite Spreads Hope & Awareness

Written by Julie Ostroff on July 29, 2022
Rebekah standing in front of a pink background wearing a crown and a sash that reads "Petite USA Mrs. Massachusetts." Image reads "Rebekah Britto Platform: National Organization for Rare Disorders (NORD) 'A disease may be rare but hope should not be.'"

I’m Rebekah Britto, Mrs. Massachusetts Petite 2022, and I have both Chiari malformation and Ehlers-Danlos syndrome (EDS). My rare disease journey began in 2013, when I started struggling with symptoms including passing out, vertigo, tinnitus, vision disturbances, and more. It took about a year of going back and forth between… Read More

Living Stronger: Jessica’s Rare Journey

Written by Julie Ostroff on June 10, 2022
Close up of Jessica smiling.

I am 17 years old and a high school junior with hEDS (hypermobile Ehlers-Danlos syndrome). I should be attending a performing arts high school for musical theatre, but that’s not the case for me anymore.

About a year ago, I was diagnosed with EDS by a geneticist, which has progressed… Read More