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Archives for: December 20th, 2018

Free Webinar: How to Make Your Insurance Work for You

Written by Lisa Sencen on December 20, 2018

Now that you are all signed up for your 2019 insurance plan, learn how to navigate it! Join us for a webinar on how to make your insurance work for you. It will cover how insurance works, information on understanding the approval process, and tips on how to successfully reverse… Read More

NORD Webinar: Genetic Testing 101 for People with Rare Diseases

Written by Lisa Sencen on August 22, 2018
Do you want to learn more about how genetic testing can be helpful in the diagnosis and management of rare diseases?
We will cover these topics and more in a free webinar on August 22 at 3:00 p.m. EDT. Join us as Debra Regier, MD, Director of Genetic and Genomic Education at… Read More

Free Educational Webinar Policy 101: Role of Government in Rare Disease Policy and Tips to Advocate for You and Your Loved One

Written by Lisa Sencen on February 20, 2018
Your local and state governments, as well as the Federal government, each play an integral role in enacting and implementing policy that affects the health and well-being… Read More

NORD Issues Statement Opposing the Preserving Employee Wellness Programs Act (H.R.1313)

Written by Jennifer Huron on March 15, 2017

Washington, D.C., March 15, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement opposing the Preserving Employee Wellness Programs Act (H.R.1313):

“Last week, the House Committee on Education and the Workforce voted to advance the Preserving… Read More