Ensuring Access to Clinical Trials Act Archives - NORD (National Organization for Rare Disorders)

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Archives for: September 29th, 2015

NORD Issues Statement Applauding the Approval of Ensuring Access to Clinical Trials Act

Written by Jennifer Huron on September 29, 2015

The following statement was issued by Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), on yesterday’s approval of the Ensuring Access to Clinical Trials Act (S. 139) in the United States House of Representatives.

The House of Representatives echoed the U.S. Senate and… Read More

Ensuring Access to Clinical Trials Act of 2015 Passes in the U.S. Senate

Written by Jennifer Huron on July 17, 2015

A win for the rare disease community

Yesterday, the U.S. Senate passed the Ensuring Access to Clinical Trials Act of 2015 (S 139), which NORD has supported. The bill would make permanent the Improving Access to Clinical Trials Act of 2009 (IACT). Without… Read More

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Copyright ©2018 NORD - National Organization for Rare Disorders, Inc. All rights reserved. NORD is a registered 501(c)(3) charity organization. Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.