Ensuring Access to Clinical Trials Act Archives - NORD (National Organization for Rare Disorders)

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Archives for: September 29th, 2015

NORD Issues Statement Applauding the Approval of Ensuring Access to Clinical Trials Act

Written by Jennifer Huron on September 29, 2015

The following statement was issued by Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), on yesterday’s approval of the Ensuring Access to Clinical Trials Act (S. 139) in the United States House of Representatives.

The House of Representatives echoed the U.S. Senate and… Read More

Ensuring Access to Clinical Trials Act of 2015 Passes in the U.S. Senate

Written by Jennifer Huron on July 17, 2015

A win for the rare disease community

Yesterday, the U.S. Senate passed the Ensuring Access to Clinical Trials Act of 2015 (S 139), which NORD has supported. The bill would make permanent the Improving Access to Clinical Trials Act of 2009 (IACT). Without… Read More

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#OrphanDrugs remain less than 10% of the overall medicine budget in the United States according to the recently rel… https://t.co/XQbjLNURXg2 days ago
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This week, #NORD Director of Research Programs, Vanessa Boulanger, is attending @ISOQOL 25th Annual Conference in D… https://t.co/QEeVhzQ1Gx2 days ago
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