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Archives for: July 13th, 2017

NORD Issues Statement Regarding the Release of Revised Draft of the Better Care Reconciliation Act

Written by Christina Jensen on July 13, 2017

Washington, D.C., July 13, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the release of a revised draft of the Senate Leadership’s Better Care Reconciliation Act of 2017:

Senate Leadership today released a revised… Read More

The Will to Live and the Strength for a Cure

Written by admin on December 18, 2014
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The day Joshua Frase was born, his parents Alison and Paul, were given grave news about their newborn’s life – he most likely would not survive that day. His weakened muscles could not function normally which affected his ability to breathe on his own. Miraculously, Joshua survived, and when he… Read More

Proposed Rules for Health Insurance Market Reforms and Essential Health Benefits

Written by Diane Dorman on November 28, 2012

On November 20, 2012, the Centers for Medicare and Medicaid Services (CMS) released the long-awaited proposed rules for health insurance market reforms and essential health benefits. These provisions of the Affordable Care Act (ACA) are meant to protect patients with pre-existing conditions from discrimination and provide protections against other insurance… Read More