Scroll
To Top
Menu

Archives for: August 21st, 2017

NORD Issues Statement in Response to the Signing by President Trump of the Food and Drug Administration Reauthorization Act of 2017

Written by Lisa Sencen on August 21, 2017

Washington, D.C., August 21, 2017—Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today issued the following statement in response to the signing by President Trump of the Food and Drug Administration… Read More

Providence Full and Half Marathon

Written by Lisa Sencen on May 7, 2017

Running for Rare, NORD’s signature charity marathon team, will be participating in the 2017 Providence Marathon. Click here to apply.

About the Team

When you join Running for Rare, you are joining a group of individuals who are passionate and committed to an important cause. Running for… Read More

Alone we are rare. Together we are strong.®