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Archives for: June 25th, 2018

NORD 35th Anniversary Blog Series: 1990s-2000s

Written by Jennifer Huron on June 25, 2018

2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary.  For the past 35 years, NORD has taken pride in being the rare disease community’s biggest advocate.  Our policy, research and other efforts have played a significant… Read More

Today is Rare Disease Day®

Written by Jennifer Huron on February 29, 2016

rdd-social-profileOn this day, join the 30 million Americans who are making the voice of rare diseases heard. Your participation on Rare Disease Day means more awareness and hope for 1 in 10 people and families across the country, and others… Read More

Rare Disease Day Video for 2016 Launched

Written by Christina Jensen on February 4, 2016

On Wednesday, EURORDIS released the official, global video for 2016 Rare Disease Day. The video focuses on the special moments in the lives of people living with a rare disease. EURORDIS says, “everybody experiences those special moments with their relatives, children, friends and colleagues. For people living with… Read More

Rare Disease Day 2016 Theme and Slogan Announced!

Written by Jennifer Huron on September 16, 2015

Rare Disease DayTheme: Patient Voice
Slogan: Join us in making the voice of rare diseases heard

It’s here! As the official sponsor and host of Rare Disease Day in the U.S., NORD is excited to announce the theme for Rare Disease… Read More

Rare Disease Day 2016 Theme and Slogan Announced

Written by Jennifer Huron on September 16, 2015

Rare Disease Day official logoTheme: Patient Voice

Slogan: Join us in making the voice of rare diseases heard

As the official sponsor and host of Rare Disease Day in the U.S., NORD is excited to announce the theme for Rare Disease Day… Read More