eurordis - National Organization for Rare Disorders

For Patients & Caregivers
For Clinicians & Researchers
For Patient Organizations
Contact NORD

Rare Disease News
Resource Library
About Us
Events
Donate

Understanding Rare Disease
- - Where to start
    Rare Disease Facts and Statistics
    NORD’s Rare Disease Database
    Rare Disease Video Library
    What It Means To Be Undiagnosed
    Find A Rare Disease Organization
  - Stay informed
    Stories That Inspire
    A Podcast For The Rare Disease Community
    Rare Disease Day
    Resource Library
    Publications On Rare Disease
- - Patient stories
    Christina’s Lease on Life
    Read More
Living with a Rare Disease
- - Manage your care
    Getting Help & Support
    Managing Your Disease
  - We can help
    How NORD Can Help
    Speak To Someone at NORD
    Rare Disease Centers Of Excellence
    Patient Assistance Programs
    Explore Clinical Trials
    Find A Patient Organization
    Caregiver Resources
- - You Are Not Alone.
    Resources & Services
    Learn More
Community Support
Advancing Research
Driving Policy
- - NORD policy and you
    Public Policy Positions
    Policy Statements & Letters to Policymakers
    Policy Steering Committee
    Rare Disease Advisory Councils
    NORD’s State Report Card®
  - Taking action
    Join the Rare Action Network®
    Become a State Ambassador
    Take Action on Key Issues
- - Join A Current Campaign.
    Changing lives of those with rare disease.
    Learn More
Get Involved
- - Raising awareness and funds with NORD
    Do-It-Yourself NORD Fundraiser
    Student Awareness & Fundraising
    Sports & Fitness Fundraisers
    Media Inquiries
  - In your community
    Attend An Upcoming Event
    Find a Rare Disease Patient Organization
    Stay Informed With NORD’s Email Newsletter
    Rare Disease Day®
- - Patient stories
    Share Your Story
    Careers At NORD
    Intern At NORD
    Jobs At Patient Disease Organizations
  - Show your support
    Visit the NORD Store

Search for:

Donate
Understanding Rare Disease
Living with a Rare Disease
Community Support
Advancing Research
Driving Policy
Get Involved
Rare Disease News
Resource Library
About Us
For Clinicians & Researchers
For Patient Organizations

HAVE A QUESTION?
GLOSSARY
HELP? 555-555-5555

Home / eurordis

For Patients & Caregivers
For Organizations
For Clinicians & Researchers

Sign Up for NORD News

National Organization for Rare Disorders (NORD)

1900 Crown Colony Drive
Suite 310
Quincy, MA 02169
Phone: 617-249-7300

Other Locations:

Danbury, CT office
55 Kenosia Avenue
Danbury, CT 06810
Phone: 203-263-9938
Fax: 203-263-9938

Washington, DC Office
1779 Massachusetts Avenue
Suite 500
Washington, DC 20036
Phone: 202-588-5700

Understanding Rare Disease

Living with a Rare Disease
- Manage Your Care
- We Can Help

Rare Disease Community and Support

Rare Disease Research

Rare Disease Policy
Donate
- Donate to NORD
- Donate to Research
Help People with Rare Disease
Legal
- Terms of Service & Privacy Policy

Rare Disease News
Resource Library
About Us
Media Inquiries
Help People with Rare Disease
Careers
Brand Usage Guidelines
Sitemap
Contact

NORD is a registered 501(c)(3) charity organization.
Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.

Name(Required)

First Last

Hidden

Title(Required)

Organization(Required)

Interest(Required)

CAPTCHA

Terms of Service & Privacy Policy

By continuing to use this website, you agree to the Terms of Service & Privacy Policy

I Agree